Thursday, April 20, 2017

PCL2: April is Only the Beginning

Prior To My Cancer Diagnosis, I Had No Idea There Was a Specific Month For Testicular Cancer, Which is a Major Men's Health Issue.

April is Testicular Cancer Awareness Month. Testicular cancer is under-discussed. Perhaps it’s an issue of visibility, since testicles are usually concealed (unless you’re on some beaches in France).

I’ve been running ABSOT with the explicit goal of changing the attitudes and beliefs of society towards talking about men’s health. However, I’m just one person with a blog and still feel like society has a long way to go before testicular cancer is as acceptable to discuss as I’d like it to be.

Breast cancer awareness gives me hope

I have hope though, especially when I look at another cancer that is generally thought of as gender-specific: breast cancer. It wasn’t easy for breast cancer activists to raise the level of awareness that the disease has today. As recently as the 1950s, the New York Times refused to print articles that contained the word “breasts.”

In the 1970s, Shirley Temple Black and First Lady Betty Ford publicly announced their diagnoses, which helped bring widespread attention and acceptance to this cancer. Nowadays, dozens of female celebrities speak out about their personal battles, NFL teams wear pink to bring more attention to the disease, and many other companies and highly-visible corporations make a point to contribute to the discussion around breast cancer.

When it comes to testicular cancer, if you ask anyone to name a celebrity with a TC diagnosis, they will most likely respond with Lance Armstrong (who then went on to have some other personal troubles). Not the best “face” of the disease. However, recently, I’ve read stories of more and more athletes, celebrities, and even a YouTube personality who are sharing their testicular cancer battles. A step in the right direction.

I want to live in a world where we can freely talk about testicular self-exams.

I want conversation to be open about all health issues, but I’m especially passionate about men’s health. Not talking about it can be a potentially life-threatening mistake.

I’ve already written about how men are hesitant to go to the doctor. I know I was. Even making a phone call to a medical professional seemed to be such an arduous task, although in all likelihood it saved my life.

One egg in my Easter basket
The other day I saw a friend whom I hadn’t seen since before my diagnosis. After exchanging pleasantries, he asked me how I was doing and said he was thinking a lot about how I had testicular cancer. He said that he didn’t even know what to look for. I took this as an opportunity to give him a quick rundown on how to do a testicular self-exam and recommended that he do them at least once a month.

Despite my willingness to discuss this on my blog, I still felt a little strange talking about it verbally with another guy. I wish I didn’t, but I also want to be honest about the limitations that surround having open conversations about testicular cancer. While we were talking about it, I don’t think the word ‘testicle’ or ‘ball’ or any of the other variations was used. I want to change this dialogue, both for myself and for everyone else. I want it to be deemed as okay and not weird to talk about testicles under medical circumstances. I know this starts with me. Confronting my own discomfort will help me start to have more honest conversations. But I know that I am only a small part of what needs to be a widespread change.

How can we as a society overcome the stigma that surrounds testicular cancer? 

Having months like April designated as “awareness months” is helpful, but awareness can’t be something that only happens for one month out of the year. I found a lump in October and was diagnosed in November. April is a long way off from those months. Discussions about self-checks need to happen more frequently.

There are fundraising runs and events, but I only know this because I’m looking for them as a testicular cancer survivor. I was aware because I had to be: testicular cancer was a part of my life, like it or not. But what about those men from 15-44 who are highly susceptible to testicular cancer? Like me, the average guy doesn’t know about the importance of regular self checks until it’s too late, and I know this is sad truth is because people don’t want to talk about their testicles. Testicular cancer is highly treatable, especially in its early stages, but that does no good if men simply aren’t aware of their own risk. We can’t let these conversations about testicular health, no matter how awkward they might be, get brushed aside because society feels uncomfortable discussing testicles.

My goal with ABSOT is and always will be to bring awareness to this disease and to discuss it openly with the hopes that it inspires others to do the same. I don’t have all the answers, but I know testicular cancer awareness and open discussions about men’s health is a mission that needs to be important to all people. Simply put, testicular cancer does affect everyone, not just men. It affects anyone who has a father, a brother, a husband, a son, or a male friend.

Here's my challenge to you: Share this blog (whether it's this post or the whole site) with two males that are important to you and encourage them to do the same. We need to get more information into the hands of the men that lives can be saved by having more frank discussions about this topic.

Author's Note: Be sure to check out April 2018's post for actionable ways to put this into practice.

Will you help me get the ball rolling and shed some light where the sun don’t shine?

A self exam is how most cases of testicular cancer are detected early. Click the image for video directions or click here for a larger version

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  1. Thanks for sharing your story! I am happy to see that you have beat this and seem to be back to a semi normal life.

    I just had an ultrasound and found 3 solid intratesticular solid masses. When I first found out I couldn't believe it. I am going in next week to have my left testicle removed and pathology run.

    What is interesting is even by doing a hand test these are non palpable masses. The only reason I went in is because my brother was just diagnosed with testicular cancer and my left testicle was kind of aching.

    My doctor ordered an ultrasound even though he couldn't feel anything and things felt normal down there. While I'm hoping for this to be something else other than cancer I have prepped myself for it and hope it was caught early if it is indeed.

    Good luck to you and I'll be subscribed to your blog. This blog and my brother have given me my own inspiration to perhaps document my own story if this does turn out to be cancer with me as well.

    1. I'm so sorry it took me so long to respond to this.

      How is everything going for the two of you?

  2. Hi Justin,

    No problem! My brother is currently doing Chemo. His Chemo regimine is pretty intensive due to the nature of how big the mass was in his abdomen. He has a few more weeks of those treatments then I'm hoping he gets an all clear. I'm not sure if he'll have to do the RPLND surgery.

    As for me, I had my surgery and pathology came back as Seminoma. I did my first CT scan and it showed borderline enlarge lymphnodes so I have a follow up scan in about a week.

    Your blog inspired me to document my journey as well. I started making some posts. My blog can be found here -

    I hope all is well with you!